The pain started for Eva about six months ago, while Jim was still with us. Ripping, burning pain deep in her gut whenever she ate or drank anything. The pain level varied from food to food to drink to drink to day to day, ranging from barely bearable to I'm-just-going-to-sit-here-and-cry-until-the-drugs-knock-me-out.
We worked around this the best we could while we waited for our health care system to digest her case. Liquids needed to be either scalding hot or Antarctic cold to stand a chance of going down without incapacitating her; some foods, like chow mein (for whatever reason) tended to elicit only the 'barely bearable' pain, or at the most pain that was only briefly untenable, say 5-10 minutes. But too much of any one thing (defined as 2-3+ bites) would almost always leave her whimpering and teary-eyed for an hour or more. Before long too much of anything at all, defined the same way, would have that effect.
Luckily, her 2013 bariatric surgery meant that whatever could pass through her guts did it quick, and so instead of three meals a day, I'd make her ten. But she'd still only manage a bite or two of each, if that.
An MRI found a stone, or possibly multiple stones, right where her bile duct met her gallbladder. A cholecystectomy was scheduled for September 1...which is actually the Ontario health care system moving at high speed: that was only six weeks away, at the time.
We were very happy to find out her surgeon had performed numerous Roux-en-y gastric bypasses and would thus be intimately familiar with Eva's internals. The surgeon confidently told her that barring unforeseen complications, Eva would have her gall bladder out and be home enjoying a helping of "the greasiest, junkiest food you love to eat and can't right now" that very day.
That very day came, Dr. Li peered into Eva to see what she was doing...and found unforeseen complications well beyond her expertise. Those complications are something entirely separate that I will be writing about at a future date.
My wife was referred to a "specialist's specialist" in Kingston.
And so we waited. I will always defend the Canadian health care model over its American counterpart, but with a giant caveat: governments of all stripes have made like Eva and slowly starved the system for decades, and conservatives across the country, led by Doug Ford in my own province, are busily dismantling and privatizing whatever they can. Ontario would need to hire 26,000 nurses to match the national average per capita. Instead, Ford is cutting them. The wait time for a specialist, let alone a 'specialist's specialist', can be and often is measured in years.
Meanwhile, Eva was slowly starving to death, dehydrating herself, and throwing numerous other things out of whack. Her iron is chronically and comically low -- even after a giant infusion, she started losing iron immediately. Her blood sugar would constantly crash into the twos. Her blood pressure bottomed out at something like 70/49.
Women need a baseline of 1200 calories a day just to stay alive. There is no way Eva was averaging much more than that. More and more, her throat would simply close up before she could even put something in her mouth....and can you blame it? NO STOP HALT there is only excruciating pain if I ingest this WILL NOT ACCEPT SORRY NOT SORRY.
It was, as it always is, a fight to get her to accept going to hospital. Nobody wants to go to hospital...sometimes the more they need to go, the less they'll accept going. Yes, hospitals are presumably where they fix your pain. But the price of fixed pain is public pain, in an environment that can't help but be vastly less comfortable than your own home. I pushed and I poked and I prodded, but without an immediate threat to her life she would not be forced.
Last Tuesday, she agreed to go, but only to Campbellford, the closest hospital to us, about a 15 minute drive. An argument ensued. Campbellford is a small town with a small hospital ill equipped for anything out of the ordinary, and we already knew Eva's condition was out of the ordinary.
To Belleville we went, 45 minutes away. ERstat.ca's live ER wait times estimate suggested a 7.5 hour wait to be seen. More evidence of a health care system struggling under a load current funding can't even hope to address. You wait, of course, because emergencies jump to the front of the line.
In three hours, less than half the estimated wait period, Eva had been seen by a triage nurse, a regular nurse and a doctor. The admitting team had been consulted, and they determined Eva's issues were beyond what that hospital could address. She would be sent by patient transfer (a volunteer service) to Kingston, a large teaching hospital, as soon as a bed opened up there. If that's not the front of the line, it's a fair facsimile.
I could not go with her. Patients only in the transport vehicle, and nobody had the time or inclination to get me to Kingston, which is about an hour from Belleville and an hour and a half from our farm.And so I want home to look after our animals and fret.
The positive: hey, she was seen fast, by recent standards. The inevitable negative: that must mean things are serious.
She scared them when she got to Kingston, I later learned. Surgery was immediately postponed and they spent what turned out to be a week 'optimizing' her. She was severely dehydrated, and her potassium, selenium and copper levels were negligible, among other things.
Cousin Sherry, who hails from Nova Scotia, was in Kitchener for unrelated business and she wanted to see Eva. She had no issues detouring a half an hour out of her way so that I could see Eva too. That was Thanksgiving Monday. By that time no fewer than thirty doctors and doctors-in-training had spent time with Eva.
I've been in big hospitals before. Sudbury General, where my dad had his heart attack, is massive. Kingston General utterly dwarfs it. The ER has four wings, each with its own ambulance entrance and heliport. Eva had a lovely view out her window comprising one of those heliports, the steam plant that powers the whole hospital...and a nice slice of Lake Ontario.
She hadn't been cleared for surgery yet. But she looked worlds better than she had when I last saw her. "Juicier", said Sherry, and she was right. Whatever they were doing, and they were doing a lot, it was clearly helping her. But the date of her surgery kept fluctuating. It was on and off again so many times that we very quickly determined not to update anyone with information written in water.
I purposely held off looking up Eva's surgery and how her other issues might affect it. This is not something I am usually able to refrain from: I want information and I want it all, even if it's bad, because my mind will always make it worse. But so does anything online. Tell WebMD you have a headache and it'll go "Yup! And it'll be the last headache you ever have!"
I didn't need that. I needed actual facts, and they were thin on the ground. I didn't even know for sure what the surgeons would be doing....because neither did they. The one thing that stayed a constant was that they wouldn't know exactly what they could do, what they might have to do, and what couldn't be done...until they got in there. We just hoped like hell that they could do what had to be done. It was supposed to be a four to five hour surgery, counting time in the recovery room. Eva texted me at 4:41 a.m. Wednesday (I had to peel myself off the ceiling when the notification went off) saying the surgery was on. An hour later it was off again. Maybe. Maybe it'd be later that day. Maybe not. Maybe my brain would explode.
On Wednesday night they told her she was first in line. They had hoped to get to her that day -- she'd been NPO (non per ora, nothing by mouth) since midnight the night before -- but that didn't happen. They gave her crackers and peanut butter for a late 'supper' and she went back to bed.
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Thursday, 6:51 a.m. "Going in within the hour". I asked her if she wanted me to update everyone with that information now, or wait until she was REALLY going in, and given our level of trust in the schedule at the time, it was no shock to me she said the latter.
So I waited.
At 8:15 I texted her "waiting is hell"....and by 1:00 p.m. she still hadn't seen the message. The logical part of my brain told me they had just grabbed her without warning and she'd had no time to message. The rest of me had other ideas.
She's dead.
Fuck off, she's not dead, if she was dead you'd have gotten a call, you know that.
Why do I know that? They haven't bothered telling her anything, why would they deign to tell me?
SHE'S NOT DEAD YOU ABSOLUTE SOUP FORK
I finally broke down and called the hospital, seeking a nurse who could tell me for sure that she was dead out of surgery, or still in surgery, or asleep in her room waiting to go for surgery, or off tripping the light fandango somewhere.
Or at least I tried to call. Thanks to what I later found out were widespread cellphone issues in my area, none of my calls would connect. When they did connect, they'd drop almost instantly.
I don't remember this issue with landlines, do you?
Friends and family overwhelmed me with prospective numbers. One of them even called on my behalf, not to get information they certainly wouldn't give her but just to make sure they'd give it to ME when I called. And they did.
"She looks fine," I heard. "She's in recovery, deeply asleep".
A freight train lifted off one of my testicles. "Fine"was good. "Deeply asleep" was also good. It's not as if her pain would let her sleep much more than she could eat or drink. I think I can trust a hospital to know the difference between deep sleep and that other D word I evidently no longer had to entertain. I wouldn't bother Eva. I'd wait for her to contact me. Until tomorrow morning, if necessary.
She called me around suppertime two minutes after she was wheeled back to her room and two seconds after she figured out how to move again. An apartment block lifted off my other testicle and I could breathe properly again.And she could eat again. Roast beef with mash and carrots.
They had removed the gallstone, which was right where the bile duct met the gallbladder. They took the gall bladder and the bile duct. They gave her a blood transfusion. They drained five litres of fluid out of her belly.
Discharge worked just like surgery: it was going be tomorrow. No, it couldn't possibly be before next Tuesday. As of yesterday morning when I left to go see her, she wasn't coming home that day. By the time Danielle and I got there, she was.
Now she's home and resting mostly comfortably, in a lot less pain that she's been in for months. If she goes really, really slow and employs a walker, she can get to the bathroom, use it, and get back to her chair mostly by herself. (There's a single step between the hallway and living room and I lift or lower the walker down over that step...she's not supposed to lift more than ten pounds.)
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The list of thank-yous.
To the doctors and student doctors at Kingston General, first off. You pulled off a surgery that is delicate and highly risky and you did it well. But even before that you impressed us. One of the doctor-teachers asked Eva why she hadn't sought medical attention prior to this and Eva told the truth: she had been dismissed as "drug-seeking". Whereupon teacher-doctor addressed student-doctors while pointing out various places on my wife's body. "There, there, there, there, and especially THERE are classic signs and symptoms", he said, and then addressing the "drug-seeking" nonsense: "DON'T DO THAT. LISTEN to your patients. ESPECIALLY the women."
To the nurses, all of which were incredible, but Tristan, Christina and Abbey were above and beyond incredible. I saw Tristan four times in the four hours I was with Eva the first time and each time she TOOK the time to really listen and address any concerns she possibly could.
Together, you have redeemed Kingston for Eva. Her dad died there and she has horrible memories of that vigil. She swore up and down she'd never set foot in that city again. But arriving in a stretcher clearly doesn't count, and now thanks to the staff at Kingston Health Sciences Centre, she no longer has an issue with Kingston.
To Sherry, for taking me to see Eva and for all that you did before and after, including getting us stuck in the parking garage for 20 minutes while you searched for the parking stub you had put "in a safe place" that turned out to be another dimension. That was fun, let's do that again sometime! Love you.
Always to Danielle and Julia and Sarah, without whom this place wouldn't function. We love you and we are deeply grateful for your concern and your help.
To our friends and family who checked in on us and who kept me from going completely bugshit over ten days without my wife. Love you all. That's the second longest she's been out of the house, and on the longest -- when she was caretaking her mom -- I at least had Mark to talk to. This time all I could talk to were animals, who insisted on expressing their dissatisfaction with the Eva-less state of the house by pissing in front of her chair twice a day.
And finally, at long last, to Eva, my rock, for whom absolutely nothing has come easy over the last few years. You made it. Again. And you're home where you belong, and I love you.
So, so much.






